Parkinson’s Disease: Moving Forward After Diagnosis
September 7, 2018

Recently, there have been numerous celebrities in the media diagnosed with Parkinsonâs disease. Some include Michael J. Fox, and Muhammad Ali, who was diagnosed at age 42. Yet, recently we have had announcements from older adults, Alan Alda, 82, and Neil Diamond, 77, being recently diagnosed with the disease. The symptoms that led up to the diagnosis werenât the typically afflictions that weâve seen such as tremors or loss of automatic movements. Alan Aldaâs symptoms included a twitch in his thumb and hallucinations. Mr. Alda referred to a New York Times article, which summarized if you act out your dreams (in your sleep) it could be an early symptom of Parkinsonâs disease.
After youâve been diagnosed, it feels like your world is in chaos. What next? You wonder what this diagnosis will mean to your family, friends, and co-workers in the days, months, and years to come. Donât panic. There are choices â you can sit, sulk, become a victim or you face this disease head-on, decide to live your life, not let Parkinsonâs define who you are.
The symptoms of Parkinsonâs disease can vary from person to person. However, the most common symptoms are moving more slowly, stiffness in mobility, jerky or uncoordinated movement, arm stays close to your side, lack of smell, the writing of letters is getting smaller, the slight twitching or shaking of finger, hand, or foot or the lack of facial expression, and seriousness. There are early signs and symptoms of Parkinsonâs that if diagnosed in the early stages could be beneficial in properly treating the disease for quality of life.
Begin your process with asking your doctor for a referral to a neurologist who specializes in movement disorder. A general neurologist will treat clients with numerous types of neurological conditions. A movement disorder specialist has acquired additional training in Parkinsonâs disease and other disorders including dystonia chorea, tics, and tremors. This specialist is usually on the cutting edge of knowledge and treatment. He or she can also offer a tailored plan of care for you and your specific needs.
Next, build your support system to include not only the specialist, but medication awareness, medical support, nutrition and exercise information, emotional well-being concepts, and complementary therapies. The more you know and understand the better prepared youâll be for the changes within your body. Communicate, be honest, and let people know you live with Parkinsonâs disease. Educate and involve people in the disease, we want everyone to make a difference.
Remember take action early this will enable you to understand and deal with the disease. The support system you develop will help assist you with a sense of control over your life and thereby improve the quality of your life.
Helpful Websites:
Parkinsonâs Association of Northern California (PANC) https://www.parkinsonsacramento.org/
National Parkinson Foundation https://www.parkinson.org
Michael J. Fox https://www.michaeljfox.org
Partners in Parkinson https://www.partnersinparkinsons.org
âDeon Batchelder, MA, CMC
Deon is a certified Aging Life Care Manager with Elder Options, Inc. in Placerville. Deon has her Masterâs Degree in Gerontology and is a professor in the CSUS Care Management Program.
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